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You have to compare what could go wrong
at home with what can go wrong incenter. Home patients are much less likely
to get infections or suffer at the hands of ill-trained staff. Because
home patients can give themselves adequate dialysis they do not have the
complications incenter patients have who are forced into the 4 hour/three
time a week cookie cutter.
Home dialysis is a very smart idea if you would like to have a full life. But in exchange for their life the home patient must give effort.
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I have wondered some of the same things
another poster expressed. In Center you do have quality issues but you
are only there 3 times per week so you do have weekends free to do as you
wish. Home hemo I have heard is 6 nights/days per week.
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Regular dialysis is only 3x a week but
for those who have dialysis fatigue and BP problems they are dealing with
dialysis more than just the in-center time. In-center patients are also
dealing with it watching fluid and diet. My father feels "much, much freerer
on nocturnal and so does our family. For one thing we no longer think about
the in-center schedule when we want to do something. We make our plans
and adjust the dialysis time around those plans. Dad loves eating and drinking
like he used to before becoming a dialysis patient. He loves the fact his
energy level is good. On nocturnal there is the freedom of how many hrs.
you want to run. There is the freedom of starting when you want to and
quitting when you want to. Also there is no law that says nocturnal has
to be 6 nights a week. Some times we run 5 if there is something special
going on. We have even run 4 nights and a day to get a long weekend or
we have a short run during the day to take a night off. I believe the Fresenius
programs are all 4 nights a week. For us being at home just makes it so
much more comfortable that the time to get ready for dialysis doesn't seem
to be a big deal. Actually I set up the machine and I turn on the TV and
listen to the news while I'm getting the machine ready. We, Mother, Father
and myself don't have any trouble sleeping through dialysis and it feels
good to wake up in the morning and know dialysis is taken care of and the
day is ours. Living in the North with all the winter, it's comforting to
know we can do the treatment at home and not have to go out in the cold
and clean the car off and all that. I can understand someones concern about
blood leaks but I have to assume it is rare. The program we are in has
been going on 5 years and no problem yet. Also I think Lynchburg hasn't
had any either. As the other poster mentioned it is peace of mind knowing
we have some control over infection. We do our 3 minute washes, use gloves
and don't take chances. Nor do we have to worry about patients coming in
sick and spreading germs. Or for that matter staff coming in with colds
etc. and spreading germs. We also have peace of mind knowing the machine
is set right, the bicarb etc. isn't out dated. The dialyzer is new. And
most important of all dad feels healthy and has for the 3 1/2 years we
have been on it. Our family believes the benefits outway the risks. Trust
me from some of the techs I have come across I'd rather be my dads tech
any day. I think there is something patients should keep in mind. To fully
understand what decision is right for you, you really need all the facts
that fit your particular situation. The best way to get those facts is
to do it. Rather it is home hemo, daily dialysis or nocturnal you can quit
at anytime and go back in-center.